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Life Lessons  /  February 23, 2019

I had to realize, Mark still has Lyme Diease

by beanie1

So many things have fallen into place within the last couple of months yet, I have not been able to figure out why I was still angry and frustrated. I prayed and prayed. I talked with trusted friends to check my blind spots. After a few conversations with great friends, I realized the reality is, Mark still has Lyme Disease. I have expected him to be a healthy human being. A human who is able to run alongside me tackling projects left and right. Except, he’s not a healthy human being.

Within our new financial freedom, I wanted our life to be like a normal, healthy couple. We are not. Mark’s forearm muscles do not allow him to shovel snow, mow the lawn, vacuum the carpets, or anything else that would vibrate on his arm muscles. If he does any of these things he will not be able to hold a pencil, turn on the faucet, or type on his keyboard to work.

After we bought our house Mark and I sat down and made a list of all of the projects we wanted to get done. We realized even the easy DIY projects would require Mark’s arm strength. We are working through our list to decide which ones he can walk me through and which ones we need to hire out.

When I stopped to realize I was asking Mark to function as a healthy person it was humbling and freeing at the same time. I was able to let both of us off the hook. I could allow him the freedom to be sick and to accomplish the tasks he is able. This realization has also allowed me the freedom to not be so hard on myself. I can now make realistic goals based on our situation.

I am so thankful for God and good friends to help me wade through life. To help me pull the planks out of my eyes and to get perspective on my blindspots. It’s humbling to have them revealed to me because those around me have been able to see them well before I could see them in my peripheral vision. Yet, acknowledging the blind spots and being honest with myself about my behavior and my life is going to help give me peace, clarity, and make realistic goals I can accomplish.

We are learning new ways to spend time as a family and to tackle projects as a family. Mark has Lyme Diease, but we will get through it one baby step at a time.

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5 comments

  • Val - Corn, Beans, Pigs & Kids
    February 25, 2019

    I appreciate how open and honest you have been through this journey. Together as a family you will make anything and everything work.

    Reply
    • beanie1
      February 28, 2019

      Thank you, Val. It’s a hard road to walk. It’s hard to know which treatments to try, knowing most of them are costly. I wish we could just give him antibiotics and poof, he’s well again. We are working to allow our situation to make us more compassionate, kind, loving human beings.

      Reply
  • Becky Palmer
    February 26, 2019

    With all due respect, he could have been treated with antibiotics and likely be totally healthy several times over by now.

    It’s just silly and close to inhumane allow him to continue to suffer this much when modern medicine has proven cures readily available. 4 to 6 weeks of antibiotics would be faster and likely cheaper than everything you’ve been doing for a very long time now that clearly isn’t working.

    Reply
    • beanie1
      February 28, 2019

      We’ve tried the antibiotic route, actually. He was on them for a full year. It is not recommended for someone to be on them longer than six months at a time, due to the overall effect antibiotics have on their gut. It’s also not as simple as just giving him antibiotics and poof, we’re on our way. I wish it was! The four to six weeks for the antibiotics is more for those who have caught it early on and it often catches it and will put the body into remission. Lyme is nasty and complicated, what works for one person, won’t work another person. I wish it was a simple process, but it’s not, unfortunately.

      Reply
  • Self-Sufficient Chronic illness – Russell's Adventures
    November 22, 2021

    […] soon. If Mark was healthy our life would look a lot different. But, it’s not, so we must be realistic. We are blessed because our four kids and I (Robin) can tackle most of the daily […]

    Reply

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